July 1st, 2008

Butterfly Lady

Real life catch up and multiple memes

I've been meaning to sit down and write for the last few weeks, but this is the first time that I've had both the inclination and the opportunity. Lets see. . . two weeks ago on Thursday a group of us from work went to Six Flags Fiesta Texas in San Antonio. The last thing my brother told me before I left was, "Be sure to use lots of sunscreen!"(I have a history of melanoma.) I did, multiple times, yet I was the only one of the entire group to get sunburned. I had to call into work the next night, because it hurt to wear clothes, my bra straps almost killed me! I did get to take a photo with Scooby-Doo. What more could I ask for? If you look closely you can see my wicked burn!

The following week I had an appointment with my oncologist, who I was sure was going to yell at me about the sunburn, but she didn't. She was just glad that I got out of the house and had fun. I had the have my Port-A-Cath(or PAC) accessed at least five times without numbing medication (I forgot it at home, an hour from my doctor's office) to get it flushed to prevent a DVT or blood clot. It is supposed to get flushed once a month, when it's not being used. Since I'm not really using it anymore I asked my doctor to make arrangements for my surgeon to remove it. Last Monday in the office, after a lot of lidocaine, my surgeon took out my port. It took about 30-45 minutes. I asked him what he had used to secure it in place since he seemed to have some trouble taking it out. He said that he used dissolvable sutures, but that the PAC grew into my chest wall muscles. So after some scraping he had it out and sutured me up put on a couple of steri-strips and I was on my way home. It's still a little sore, depending on how I move or position myself. It's worse if I decide not to wear a bra, as my top heavy-ness pulls on the stitches some. But on the plus side I am officially now completely off of my immunosuppressive medication. Yay! And by January I will be off of another one.

On the home front, we have been having some problems with the attendant that we have had almost two years, Nancy. She was great when she started, but it seems that since she got herself a new boyfriend that she doesn't know how to work or call in if she can't come in. It has been increasingly difficult to get the agency to send reliable help! So for the last month or so I have been going to work and coming home and taking care of my mom. My youngest brother's girlfriend has been a huge help, but I can't ask her to do more as she is seven months pregnant (and the agency needs to get on the ball.)

And if that doesn't just frustrate the hell out of me, guess who showed up at our front door today. . . none other than Adult Protective Services! I was going to cry until I found out what we were being accused of. Wait for it. . . we were rude to our Mother! Hold the presses! We don't hit her, starve her, or neglect her. Yes I might be short with her at times, but after taking care of her all day, sleeping an hour or two, driving an hour to the hospital, drive the hour back stopping for groceries, and then having to do it all over again with little or no help, who wouldn't? I was snippy with her and the new attendant on the day that I had my PAC taken out, as I had just had surgery, was in pain, and had to train yet another attendant on how to take care of my mom. I did apologize and explain why I wasn't feeling well. Needless to say she didn't come back. She said she was intimidated by having so much family around. What are we supposed to do, send my seventeen year old brother and his very pregnant girlfriend outside in the 90-100 degree heat so that she can be comfortable enough to take care of my mom? GEEZ! I feel like pulling out my hair!

Sorry, I've been needing to get this out all week.

On a different note, I found this video today, and thought I'd share. Alan Rickman always makes me feel better.


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